A Queensland mum who says her daughter is lucky to be alive has joined growing calls for the meningococcal B vaccine to be made available to all children and teens in Australia.
Pamela Appleton's daughter, Kristy, was 17 when she fell suddenly and gravely ill in August last year.
Kristy, an extraordinarily fit athlete, had just returned from competing in the waterskiing world championship in Canada, where she finished second in her age division.
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"The day we arrived back home in Brisbane, that's when our world was rocked by meningococcal B," Appleton said.
The family was trying to beat jetlag by staying awake, but Kristy was tired and Appleton said she was alarmed to hear her daughter moaning in the afternoon.
"I ran downstairs. Kristy couldn't move, and her neck was really sore, so I rang triple zero," Appleton said.
Kristy was taken to a local public hospital, where blood tests showed she had COVID-19.
Appleton said that despite her protests, Kristy was discharged from the hospital early the next morning, with doctors believing it was just COVID-19 to blame for her illness.
Back home, Kristy was still extremely sick and complaining of a sore head, neck and sensitivity to light.
She then began vomiting.
Both thoroughly exhausted, Appleton and her daughter tried to rest.
"We woke up at 1am in the morning with Kristy delusional and screaming. I went in and turned the light on, and she just screamed, 'Turn the light off'," Appleton said.
"So I grabbed a mask, and I masked her, and then I rang the ambulance.
"They turned up immediately under sirens, and I said, 'There is something seriously wrong.'"
At her mother's request, Kristy was taken to a local private hospital, where, suspecting she had bacterial meningitis, the doctors sprang into action.
"The doctor said, 'I don't want to alarm you, but if I don't treat this now, we're going to lose her'," Appleton said.
Kristy was put on IV antibiotics and given a lumbar puncture, which showed she had meningococcal B.
After receiving the right treatment, Kristy turned a corner and recovered, even managing to go home from hospital a week later.
More than a year on, Kristy still suffers from some fatigue, but has made a remarkable recovery.
Back to competing in waterskiiing, the Year 12 student was crowned world jump champion in August.
"I just want no-one else to go through what I went through," Kristy told 9news.com.au.
"It's not nice, it's really cruel.
Appleton said she had no idea there was a meningococcal B strain when Kristy got sick.
Last year, the Queensland government rolled out a free meningococcal B for young people under 20, with teens in Year 10 receiving the free shot at school alongside a federally funded vaccine for strains A, C, W and Y.
However, Kristy was a year too late to receive the free vaccine for the B strain.
"Kristy was in Year 10, in 2023, so she missed out," Appleton said, adding she was horrified to learn that her daughter and other kids the same age were unknowingly going around unvaccinated.
In addition to Queensland, South Australia and the Northern Territory are the only other states and territories choosing to fund their own meningococcal B vaccination programs to make up the shortfall in the National Immunisation Program.
Victoria, NSW, the ACT and Tasmania are yet to do so.
Appleton and Kristy are sharing her story following the tragic news of the death of 16-year-old Melbourne schoolboy Levi Syer.
Levi died last month, within 24 hours of contracting meningococcal B.
Levi's devastated mother Norliah Syer-Peterson told 9news.com.au she was determined to spread the message that vaccines were needed for all Australian children and teenagers.
A Change.org petition calling on the federal government to make the meningococcal B vaccine free for all Australians, started by one of Levi's school friends, has so far attracted almost 19,000 signatures.
Appleton said she was heartbroken to hear of Levi's death.
"I just don't understand why it's not part of the vaccination program for all Australians, to me, it's just ludicrous," she said.
"Why are they playing Russian roulette with children's lives?"
In response to Levi's death, the Royal Australian College of GPs in Victoria (RACGP) said the Victorian government needed to act.
"If we don't boost vaccination rates, more lives will be at risk, including young people like Levi with their whole life ahead of them," RACGP Victoria chair Dr Anita Muñoz said.
"By providing the meningococcal B vaccine free of charge for at-risk groups we can save lives across Victoria.
"Meningococcal B is a devastating disease, it kills 5–10 per cent of patients and leaves 10–20 per cent of those who survive with brain damage, hearing loss or a learning disability."
A Department of Health spokesperson told 9news.com.au the inclusion of any vaccine on the federal program was contingent on a positive recommendation from the Pharmaceutical Benefits Advisory Committee (PBAC), based on an assessment of clinical and cost-effectiveness.
"To date, the PBAC has not received an application from pharmaceutical companies seeking expanded eligibility for meningococcal B vaccine," the spokesperson said.
There have been 13 cases of meningococcal B in Victoria so far this year.
A spokesperson for Victoria's Health Department said: "The Chief Health Officer monitors the prevalence of meningococcal cases in Victoria, which informs their independent health advice on vaccination settings.
"The Commonwealth's Pharmaceutical Benefits Advisory Committee does not currently recommend a meningococcal B vaccine for the broader community."
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